Loading Docs 2021 - Fifty Percent

Web (Full Length) – 2021

Director Lillian Hanly is a researcher and television journalist. She also has a 50% chance of inheriting Huntington's, a neurodegenerative disease with no cure. Since the diagnosis of her late grandfather — renowned painter Pat Hanley — her whānau have been faced with the gut-wrenching decision to either test for the disease, or leave their futures unknown. In this short, poetic documentary for Loading Docs, Lillian Hanly interviews her partner and various family members on their attitudes towards testing. But perhaps more importantly, she hears their moving insights on how to truly live life, in the face of suffering.

Part of not getting tested has been that "if you don't know then you don't know", you know? You can just carry on with your life. But as soon as you know, you can't turn that back.
– Amber Rhodes