Baby Keegan - One of a Kind

...we don't have anybody ... who's been through there and down that track, who can help us out. So we've really got nothing to expect; we don't know what to expect.

– Keegan's father Kym on the rareness of Keegan's condition

Basically Keegan's brain had outgrown his head. He had ripples at the back of his head of solid bone.

– Michelle Maley on her son Keegan's condition, multi-sutural craniosynostosis

Although other children have been born with misshapen skulls, Keegan's is extreme, and his range of symptoms makes his condition unique in the world.

– Narrator John Sumner

By the age of five, he had endured 19 operations, including having part of his skull removed and all the bones in his face broken, so a titanium frame could be bolted on for nine weeks to train the bones to heal in a new position.

– Woman's Day writer Haley McLarin looks back on Keegan's long medical history, 27 August 2018